I managed to score an appointment with the neurologist yesterday afternoon. I got more details about the whole situation. There’s nothing horrible like a brain tumor or cancer in there. It’s definitely epilepsy, though the nurse told me the wrong part of the brain the first time. Apparently it’s my right temporal lobe and not my right frontal lobe. I’ve got a rogue piece of gray matter hanging out in there that’s kicking up trouble. She said it’s probably been there my entire life and something triggered it to get it seizing up. I don’t have to do the video EEG unless I want to consider surgery. I view surgery as a last ditch effort, so we’re going to keep tinkering with the medication. She said I can be on up to 3 medications before they’ll consider surgery. I’m on my third full day of the 2000mg / day dosage and it seems to be working. I had one seizure in the middle of the night the first night I increased the dosage. I’m still on a fairly low dose and it’s a very safe medication. They give it to pregnant women, so that made me feel better. She also gave me carte blanche to take Benadryl to help me sleep. Since not sleeping well is a trigger for seizures, she told me to use it when I need it. I still woke up a few times last night, but I slept so. much. better. I made myself stay up until 11 to see if that helped with waking up around 530-545. It didn’t, but I’ll keep trying. As Boyfriend pointed out, maybe I’m not one of those people who needs 8 hours of sleep. Maybe my body can function on less. I may just give up and instead of tossing and turning for an hour, just get up when I wake up around then. My mom pointed out that I was definitely a morning person when I was little. She claims she was the only person who knew what was on TV before the Today Show. I suspect she wasn’t the *only* one.
She also said that depression was more common in people with epilepsy. That was a relief. I was beginning to feel a bit nuts for being so down about all this. It’s nice to know that it’s not me, it’s my brain chemistry. I’m currently waiting for a call back to schedule an appointment with a psychiatrist to discuss antidepressants. I probably should’ve done that a while ago, but better late than never. That might be the last little boost that I need. Until then, I’ve got my Benadryl and the Keppra. She wants to see me every 4 to 6 weeks just to check up on me for a while. The goal is to be seizure free and I think that’s doable. I’m happier now that I’ve gotten more details and feel like I know which way we’re going with this. The next step is the antidepressants and then I suppose we’ll keep tinkering from there.
I’m glad it’s Friday. Tonight is dinner with a couple we haven’t seen in a while. Tomorrow is the thrift store in the morning, then a birthday party tomorrow night. Sunday will be whatever strikes our fancy, but I think shooting things might be fun. We haven’t done that in a while. For now it’s back to work and contemplating what I want for lunch. Deep life choices.